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                                                                        OUR MISSION STATEMENT

The Southern Wisconsin Fragile X Resource Group is committed to fostering a supportive and educational environment for people whose lives have been affected by Fragile X Syndrome and Fragile X related issues, promoting community awareness, advocating, and providing funding for the medical advancement of, but not limited to, Fragile X Syndrome. 

Fostering a Supportive & Educational Environment

The Fragile X Syndrome Day to Day Strategies Conference, featuring nationally known Fragile X Syndrome and Autism Spectrum disorder experts Sarah Scharfenaker, MA, CCC-SLP and Tracy Stackhouse, MA, OTR  was held on the campus of Marquette University on February  2. The S WI Fragile X Resource Group in conjunction with the National Fragile X Foundation, were host to over 80 teacher, therapist, psychologist and administrators. The S WI Fragile X and NFXF would like to thank all those who participated and made this event possible.

 

 

Channel 6 Fox News Reports on Fragile X

The Faulkenburg Family, August 9, 2007

 

Video

http://www.myfoxmilwaukee.com/myfox/pages/News/Detail?contentId=4023257&version=1&locale=EN-US&layoutCode=VSTY&pageId=3.5.1

 

Story

http://www.myfoxmilwaukee.com/myfox/pages/Home/Detail?contentId=4022452&version=2&locale=EN-US&layoutCode=TSTY&pageId=1.1.1

   

Monthly Meetings

Meetings will be

the 3rd Satuday of every month

 @ 10:30 a.m.

Mayfair Mall lower level Room G150

 

For more info:

   Rose Jahnke     414-690-3359  

or

wifragilex@aol.com

 

  Member's News

 

 

  • Fragile X on the TODAY SHOW!  On December 18, 2006 MSNBC began a series called "What's In Your Genes?" by focusing on fragile X syndrome. The piece featured Dr. Randi Hagerman at the UC Davis M.I.N.D. Institute and included an interview with parent Sydney Rainin as well as scenes of both a younger and an older child. The National Fragile X Foundation was pleased to play a role in seeing that this piece aired. If you didn't catch the Today Show on December 18th please click on the link below to view the Fragile X broadcast.                                  http://www.fragilex.org/html/todayshowvideo.htm 

 

 

 


 

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